I love being able to take pictures every year at the One Small Step for Prader-Willi Syndrome (PWS) event. It is hosted by our friends David and Gywn in honor of their daughter, Ellie. This year they hosted a fall festival instead of a 5K, which was so much fun. My 5 year old had a blast with the games, bounce houses and face painting. I loved seeing all the cute costumes, especially the little girl who won her category dressed as Audrey Hepburn, my favorite actress.
When Ellie (aka bat girl for the day) was just a few weeks old she received the PWS diagnosis. Since then, her parents have fought so hard for her and for other kids with PWS. Gywn works with the Foundation for Prader-Willi research in organizing this event to raise funds for research. I love coming to the event and seeing the PWS kids each year and how much they have grown and how well they are doing. We all hope and pray that one day kids like Ellie, Gracie, LeBron, and Mila (just to name a few) will be able to LIVE LIFE FULL and not have to suffer with the insatiable hunger that comes from PWS. If you want to learn more about PWS and how you can support the research for these precious kiddos, you can visit https://www.fpwr.org/
